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🕊️ Late Stage

Late-stage care and end-of-life planning.

• Advancing the Cure: How to Arrange Parkinson’s Brain Donation

  How Do We Pre-Register for Brain Donation?

• Understanding VSED: End-of-Life Autonomy in Neurodegeneration

  Confirming Capacity & Documenting Intent for VSED

• Preventing Bedsores: The Deadly Consequence of Parkinson’s Rigidity

  Why Rigidity Is the Primary Cause of Bedsores

• End-of-Life Agitation: Differentiating Restlessness from Parkinson’s

  Differentiating Akathisia from Terminal Restlessness

• Less is More: When It’s Time to Stop Parkinson’s Medications

  Understanding When Levodopa Becomes Counterproductive

• The Feeding Tube Dilemma: Hard Truths About Parkinson’s and Dysphagia

  Understanding the PEG Tube’s True Purpose vs. Perceived Benefit

• Safe Toilet Transfers: Why You Need a Drop-Arm Commode

  Why Is a Lateral Slide Transfer Safer Than Standing?

• Loading the Wheelchair: Preventing Caregiver Back Injuries

  Why Does Lifting a Wheelchair Cause So Many Back Injuries?

• Dressing Without the Struggle: Adaptive Clothing for Parkinson’s

  Why Is Dressing So Difficult with Parkinson’s?

• Fighting the Shower: Managing Combative Bathing in Parkinson’s Dementia

  Why Bathing Triggers a ‘Fight’ Response in PDD

• Sliding Down the Bed? The ‘Knee-Break’ Hospital Bed Hack

  What Is the ‘Knee-Break’ and Why Does It Work?

• Saving Your Back: When to Use a Hoyer Lift for Parkinson’s

  Why is a Hoyer Lift Safer Than Manual Lifting?